When it comes to fibro, people don't understand. They think it is all in your head. As you don't have any physical problems, they think you may be making it all up. Some people are just ignorant.
I have been living with this "Disease" now for about 20 years and I am in pain 24/7, 365 days a year. I don't sleep well either, I don't know the last day I had a good nights sleep. People with fibro, won't know what a good nights sleep is. I purchased a fitness band and it showed that I was getting about 3 hours max sleep a night, the recommended amount of sleep is 8 hours.
When i am awake and want to get up, I struggle to get out of bed. My feet and legs are in agony first thing in the morning and it is a daily struggle to get going. Then the daily struggle to get the pain under control begins. The medication I take daily are:- Naproxen, Co-codamol, Omeprazole, ibruprofen and Neurontin. Other people with fibro/A.S will take a concoction of other meds as well.
Another part of having these diseases is the depression. I suffer from this daily and it is hard to get out of the cycle and to try to be happy. A great thing people say to you is " Cheer up, it may never happen" or something along those lines. It's easier said than done, when your in pain all day everyday.
Well that is my rant for today.
Take care of yourselves.
Rob
